Resources/Community
Showing posts with label Resources/Community. Show all posts

Work Ethic Scholarships Info

Wednesday, July 15, 2026

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Image: mikeroweworks.org accessed 15 July 2026

Scholarship Information Time Sensitive 

     At first, it may not seem that scholarships for "hands on" type jobs relate to caregivers. A direct connection might not be apparent. However, those in a "Sandwich Generation" situation may be using funds to provide care for elderly parents and therefore not have the ability to provide financial aid to their children for career education. Chronic illness or disability often diminish income. Perhaps having a better paying job would allow for hiring assistant caregivers or pay for a time of respite care. 

     Mike Rowe, probably most famous for hosting the TV show "Dirty Jobs," has a foundation that is providing scholarships for learning skilled trades and other hands on jobs. The link to the website is inserted below. However, this opportunity is time sensitive and will close in October. Even if this information is not immediately helpful for you, please share it in your sphere of influence.

     As mentioned above, care giving and chronic illness do impact finances. Links to previous blog posts related to money are also inserted below.

Mike Rowe Works Foundation

Finances and Chronic Illness

Finances for Special Needs 4/9/25 

More on Money 4/23/25

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HOT WEATHER SAFETY

Friday, July 3, 2026

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Image: Weather App 3 July 2026 for Philadelphia, PA USA

Hot Weather Safety by Gail K Kachnycz on 3 July 2026

     As Philadelphia anticipates celebration of 250 years of independence, FIFA knock-out round game, parades and Welcome America concerts, we are in the midst of a heat wave requiring a health warning. Locals expect this type of weather pretty consistently through July and August. We hibernate in air conditioned spaces and escape "down the shore" or "up the Poconos." 

     The elderly and those with chronic illness are more sensitive to hot weather. Older folks have a decreased sense of thirst, and less ability to concentrate urine, so dehydration is a concern. Some medications cause increased urine output, predisposing to dehydration. Some drugs cause increased sensitivity to the sun, intensifying the danger of sunburn.

     I recently received information from Community Support Connections, an organization in Waterloo, Canada, dedicated to improving the health of the elderly in that region. A link to McMaster University provided a video with 5 quick tips on beating the heat, as well as a short list of medications and how they impact the body's ability to keep cool.

McMaster University: Heat Harder with Age 20 May 2026

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National Cancer Survivor Month

Wednesday, June 24, 2026

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Image: Cancer Ribbons from Kirbypines.com accessed 9 June 2026

NATIONAL CANCER SURVIVOR MONTH

     The month of June salutes cancer survivors, so I wanted to post an acknowledgement before the month is over. Cancer overlaps with chronic illness in many ways. In the past, a diagnosis of cancer was a prompt to "get affairs in order." Now, fighting cancer can include surgeries and months of chemo or radiation. Although the drugs and radiation are much more refined and targeted than when they were first used for treatment, there is still a debilitating effect on the body, mind, and spirit. The person requires supports of all kinds: functional, emotional, social, spiritual. One who has been a caregiver may find roles reversed. This month we salute cancer survivors and those who have sustained them along the way, with supports both large and small.

     My mother was a cancer survivor. She was treated with radical surgery and radiation in 1964. From that time on, she said she considered every day a gift. She went on to raise the youngest three of five children as a single mom, achieve her Bachelor's degree in education, and teach kindergarten for 16 years. She was a passionate gardener and participated in activities to improve the beauty of the neighborhoods where she lived in her later years. She was an amazing example of courage and faith, and encouraged others to face life with a positive attitude. When she was called home to heaven at age 79, it was not due to cancer.


My mom, Helen, and me our last Christmas. Her smile radiates her inner joy.

     Here is a link to the post from 10 September 2025, which includes information about the AACR, the American Association for Cancer Research

September Spotlight 9/10/26

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MODIFIED DIETS: Dysphagia Part 3 (Liquids)

Wednesday, November 26, 2025

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Image: IDDSI Flow Test Diagram; accessed 30 October 2025 from IDDSI.org

MODIFIED DIETS: DYSPHAGIA PART 3 (LIQUIDS)

By Flora Baker MS, EdM, RD, LDN and Gail K. Kachnycz RN, MSN 24 October 2025

     Dysphagia is the medical term for swallowing difficulties. The inability to swallow liquids correctly may allow fluids to seep into the air passages or lungs. This condition is known as aspiration. The presence of a foreign substance in the lungs can lead to infection and pneumonia. Modifying liquids, usually by thickening them, can promote complete and correct swallowing and reduce the risk of aspiration.

     Since 2019, the standard for the dysphagia diet is the International Dysphagia Diet Standardisation Initiative (IDDSI). There are five levels of liquid thickness, ranging from thin (water) to extremely thick (similar to the consistency of pureed solids). The medical provider may specify the particular level of liquids according to the IDDSI guidelines. The caregiver or client should clarify any questions with the medical provider. The IDDSI website has patient handouts which can be downloaded and instructional videos on how to prepare the liquid and check for appropriate thickness. From the Home Page, click “Resources” along the top of the screen. The drop-down menu includes “Patient Handouts” and “Videos.”

 Here is the link for IDDSI www.IDDSI.org 


     There are products on the market that will thicken thin liquids. A quick online search listed these: Thick-It, Clear DysphagiAide, ThickenUP Clear, and Purathick. These clear powders are unflavored and some can be used in both cold and hot liquids.


     Some people cannot cook for themselves. Stores like Target and Walmart have a selection of pureed meals. Clients and caregivers can check for agencies in their community that provide home delivered meals that accommodate special diets. One such agency is Meals on Wheels.

https://www.mealsonwheelsamerica.org/find-meals-and-services/

Philadelphia Corporation on Aging may help with locating agencies that provide meals.

www.pcacares.org



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MODIFIED DIETS: Dysphagia Part 2 (Solids)

Wednesday, November 19, 2025

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Image: IDDSI Framework Chart, accessed from IDDSI.org 29 October 2025

MODIFIED DIETS: DYSPHAGIA PART 2 (SOLIDS)

By Flora Baker MS, EdM, RD, LDN and Gail K. Kachnycz RN, MSN 24 October 2025

     The goal of making modifications to the diet is to allow a person to safely consume and enjoy their food. If a person is having difficulty swallowing, small amounts of solid foods or liquids may be inhaled into the airways or lungs, a condition known as aspiration. If solid foods are not chewed sufficiently or swallowed completely, there is a risk of choking.

     This post targets general modifications for solid foods. The goal is to eliminate lumps and create a texture that is smooth and pudding-like. Some foods naturally have this consistency, or are easily prepared without special equipment. Examples are:

-Scrambled eggs

-Dairy products like cottage cheese (small curd), yogurt, custard, pudding

-Soft fruits such as mashed bananas, apple sauce, mashed avocado

-Cooked cereals such as oatmeal, grits, Cream of Wheat. Milk (dairy or oat/almond milk) can be added to create desired consistency.

     Some foods may require use of a blender or food processor to soften them. The University of Virginia School of Medicine recommends the following:

-Blended cooked protein (meat, fish, poultry, tofu, nut butters)

-Pureed beans, hummus

-Blended bananas, peaches, pears

-Blended cooked vegetables such as potatoes (white or sweet), peas, carrots, cauliflower, squash (acorn, butternut, spaghetti squash)

Adding sauces, broth, milk or gravy may enhance the flavor as well as help create a smooth, soft texture.

     What are some foods to avoid? In general, foods that are hard, dry, stringy, sticky or chunky. Examples include:

-Vegetables or fruits that have seeds, tough skins, or stringy fibers such as raw celery or mangoes.

-Dried fruit of any kind such as raisins, cranberries, dried apples

-Dried meat such as jerky.

-Fried foods, such as fish or chicken.

-Dry foods such as popcorn, nuts, hard cheeses

-Some bread products, even soft breads, may form a sticky chunk when exposed to saliva

     Since 2019, the standard for the dysphagia diet is the International Dysphagia Diet Standardisation Initiative (IDDSI). There are seven levels of food and liquids, ranging from a regular diet with all textures to liquids as thin as water. The medical provider may specify the particular level of texture for solids or liquids according to the IDDSI guidelines. The IDDSI website identifies and describes the textures and thickness for each level. Instructional videos are also available. These are helpful but the caregiver should clarify any questions with the medical provider.

Here is the link for IDDSI www.IDDSI.org 

From the Home Page, click “Resources” along the top of the screen. The drop-down menu includes “Patient Handouts” which give details of each level in the diet, and foods to avoid. “Videos” show exactly how to prepare and check if the food is the correct consistency.

 


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MODIFIED DIETS: Dysphagia (Swallowing Difficulties) Part 1

Wednesday, November 12, 2025

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Image: Flora Baker 2 April 2023

     This month we welcome a guest blogger. Flora Baker is a Registered Dietician, and a good friend. I asked her to lend her expertise as a resource to A Map Through The Valley blog readers. Our first subject addresses swallowing difficulties, which may become a problem in various types of chronic illness. The topic is divided into three parts. Today is general information about dysphagia. Part 2 addresses solid foods, and Part 3 reviews liquids and community resources. Thank you, Flora!

MODIFIED DIETS: DYSPHAGIA (SWALLOWING DIFFICULTIES) PART 1

By Flora Baker MS, EdM, RD, LDN and Gail K. Kachnycz RN, MSN 24 October 2025


     Nutrition is key to improving health. Mealtimes also provide opportunities for social interaction. Eating healthy foods is so important during chronic illness. However, the progressive nature of some chronic illnesses, or treatment interventions may make eating difficult. Early signs of swallowing difficulties include choking or pain when consuming solids and/or liquids. The medical term for this condition is dysphagia.

      Some causes of dysphagia are due to changes in the mouth or upper part of the digestive tract, such as:

-Missing or decayed teeth

-Oral surgery or ill-fitting dentures

-Injury to the lips or other parts of the mouth

-Cancer of the mouth, esophagus, stomach

-Ulcer of the stomach

Other medical conditions can contribute to dysphagia, including:

-Head or neck injury

-Treatment or chemotherapy for any type of cancer

-Stroke or other injury to the brain

-Degenerative conditions such as dementia, Alzheimer’s disease, Parkinson’s disease

-Inactivity or bedrest weakens all muscles, including the muscles that aid swallowing

     If your loved one has any of these conditions, chewing effectively or swallowing completely and safely may become an issue. Be sure to discuss this with the medical provider, especially if noticing signs such as food residual remaining in the mouth, drooling, a clear runny nose that occurs when eating, or choking/coughing when trying to swallow solids or liquids. The loved one may leave meals unfinished because chewing and swallowing solids may be tiring. 

     The medical provider may recommend a modified diet based on your loved one’s current condition, but changes may be needed over time. In 2019 the International Dysphagia Diet Standardisation Initiative (IDDSI) was introduced globally. The instructions for specific needs may be based on this protocol. Be sure to clarify any questions with the medical provider.  The levels of modification are identified on the IDDSI website and can be used as a reference. 


Here is the link for IDDSI www.IDDSI.org 

From the Home Page, click “Resources” along the top of the screen. The drop-down menu includes “Patient Handouts” which give details of each level in the diet, and foods to avoid. “Videos” show exactly how to prepare and check if the food is the correct consistency.

 

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NPR: A Caregiver's Survival Guide

Wednesday, October 29, 2025

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NPR: A Caregiver's Survival Guide

Accessed 21 October 2025 by Gail K. Kachnycz

     My good friend Donna was introduced to you for Mother's Day 2024. Here is the link:

Mothers Day: Don't Compare

     Donna shared this article with me. "NPR: A caregiver's survival guide: Advice from people who've been there," by Kat McGowan and Connie Hanzhang Jin. It was published October 18, 2025 on NPR. Using the crowd-sourcing ability of public media, these authors compiled information for caregivers divided into several categories: (1) The medical maze: How to help your person through it (2) The new normal: This isn't the life I planned. How do I adjust? (3) Help! How to ask for (and accept) support (4) Self-care: It's essential and it's not what you think (5) Your new relationship: Dealing with a changing dynamic (6) Explore more resources. Each section has the option "Can't see this visual? Click here." By clicking, you will be able to access the details of that particular section.  Although not from a Christian perspective, the information is helpful to anyone in a caregiver role. Here is the link:

NPR A Caregiver's Survival Guide

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MEDICARE OPEN ENROLLMENT

Wednesday, October 8, 2025

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Image: pexelsleeloothefirst accessed 13 September 2025

MEDICARE OPEN ENROLLMENT  by Gail K. Kachnycz 

     Open Enrollment for Medicare begins October 15, 2025 and ends December 7, 2025. There are quite a few options, and health insurance "Advantage Plans" will be flooding the TV with ads. Of course, they will try to convince you that their plan is the best for you. However, unbiased information and assistance is available through PA MEDI. An appointment is needed, so make contact early to arrange a time to see a counselor.  PA MEDI was introduced on A Map Through the Valley last October, so here is the link to that post which includes more information and the phone number to call.

Post: PA MEDI Explains Plans 

Here is a link to the Medicare website that lists information about Open Enrollment. I find government websites can be "Too Much Information" but it is the official website so no bias to promote an Advantage Plan

Medicare Website: Joining a Plan


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Highlight: Dementia Friends PA

Wednesday, September 17, 2025

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Logo: Dementia Friends Pennsylvania accessed 9 September 2025

Highlight: Dementia Friends PA by Gail K. Kachnycz 

     September is World Alzheimer's Month.  I recently learned about a community resource on the "Morning Light" show on Lighthouse TV. Dementia Friends Pennsylvania is part of a global movement that was started in the United Kingdom. Here is the introduction from the website:

"To become a Dementia Friend, you join others in a one-hour Dementia Friends Information Session. The session will cover five key messages about dementia and touch on what it is like to live with dementia. As a Dementia Friend you will turn your understanding into a practical action that can help someone with dementia in your community. The action can be as big or small as you choose, because every action counts!"

Here is the link to Dementia Friends Pennsylvania:

Dementia Friends Pennsylvania

Here is the link to Lighthouse TV. The Morning Light show has featured resources for caregivers.

Lighthouse TV

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SEPTEMBER SPOTLIGHT

Wednesday, September 10, 2025

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Cancer Color Ribbons

SEPTEMBER SPOTLIGHT by Gail K. Kachnycz on 10 September 2025

     September is a busy month: the new school year begins and people return from vacation to settle into the fall routine. September is also a time to draw attention to some health concerns.

     September is Suicide Prevention Month; September 10 is Suicide Prevention Day. Those experiencing a mental health crisis, or concerned family or friends can call the Suicide & Crisis Lifeline by dialing 988. More information about this resource was published on the blog last September. Here is the link:

 Suicide & Crisis Lifeline Information

     September is also Awareness Month for several types of cancer. These are identified by the American Association for Cancer Research (AACR). They are listed here with their ribbon colors:

Childhood Cancer (gold), Leukemia & Lymphoma (orange), Ovarian (teal), Prostate (light blue), Thyroid (teal/pink/blue), Gynecologic (uterine, peach).

The mission of AACR is listed below. To learn more, here is a link:

aacr.org

The mission of the American Association for Cancer Research is to prevent and cure cancer through:

  • Research
  • Education
  • Communication
  • Collaboration
  • Science Policy and Advocacy
  • Funding for Cancer Research


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Supports for Grieving Part 2: Children

Wednesday, August 27, 2025

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Image: Helen and Joshua, Christmas Eve 1998

Supports for Grieving Part 2: Children by Gail K. Kachnycz on 27 August 2025

     In the post earlier this month, I shared a composition by my son Joshua. My mother lived with us from the time he was a toddler until he was starting third grade. A retired kindergarten teacher and lover of books, she taught Joshua to read the summer between kindergarten and first grade using phonics. He has been a wordsmith ever since then, and currently makes an income recording audible versions of books. However, since she had been a part of his life on a daily basis, her death was that much more difficult. I, of course, was also dealing with the loss of my mother and I don't know that I had enough emotional strength to help him as well. Today's post shares resources for helping children through their grieving. First, Joshua has given me permission to share this essay he wrote in 6 th grade, three years after her death.

GRANDMA GONE by Joshua Kachnycz November 2002

     One Thursday in third grade was a particularly wonderful day. I did not have a lot of homework, I had handed in all of my work for the day, and I was looking forward to getting home.

     [At dismissal time] I looked around to try to see my mom, but instead saw my dad sitting on the steps to the upper yard. As I approached him, I could see a few tears in his eyes and I asked him what was wrong. He said that he would tell me after we walked to the van. So we walked to the van, I opened the door, and tossed my backpack in the middle seat. I jumped into the van and my dad stood by the door.

     "Grandma...Grandma was in a car accident and she is in the hospital now," my dad said. At hearing that I broke into tears. I cried rivers, no lakes, no oceans of tears for probably the next half-hour. When I finally stopped I felt like I had a coconut lodged in my throat. My eyes were red and I couldn't see very well because of all the tears. After that we drove home.

     When my dad and I arrived home we found out from my mom that grandma had a broken arm, broken ribs, and a damaged lung. My grandma was on a machine that helped her breathe in the hospital for two months.

     On December 7, 1999 the doctors had to pull the plug for my grandmother's machine. Once I found out that my grandmother was gone it felt like my entire world was crumbling around me, like I had a hole in me the size of a tractor. However, not everything was as bad as it seemed. That summer I went to a family reunion in Illinois and moved to Wyndmoor where I made a lot of new friends.

RESOURCES:

In the Philadelphia area: Uplift Center for Grieving Children

Mr. Rogers, an ordained Presbyterian minister, and known for his role in the program "Mr. Rogers' Neighborhood," has said, "I've come to believe that anything human is mentionable, and anything mentionable can be manageable." I'm listing several programs and a book by him.

These materials can be obtained from 

Family Communications, Inc. 4802 Fifth Avenue, Pittsburgh, PA 15213 (412-687-2990)

Booklet and video program: Talking With Young Children About Death by Fred Rogers

Book: When a Pet Dies by Fred Rogers, Program: "Death of a Goldfish" Mr. Rogers Neighborhood

Mr. Rogers speaks on children's grief 


 


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SANDWICH GENERATION

Thursday, August 14, 2025

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Image: Family Christmas Eve 1998

SANDWICH GENERATION by Gail K. Kachnycz on 14 August 2025

     Quite often, someone caring for an elderly parent also has children in the home. Being responsible for the care of both the old and the young can include difficulties, and those in the middle can feel sandwiched, or pressed, in more ways than one. For support and resources, please see these previous posts:

Introducing...A Boomer Hero 

How to Care for Aging Parents 

     Along with the responsibilities and concerns, there are advantages and benefits. Depending on their level of function, the grandparents and grandchildren can enjoy time together and "have an impact." My mother lived with us when my son Joshua was age two to eight years. He has given me permission to share this essay which he wrote in 6 th grade at age 11. Of course I am biased, but I think he was quite articulate. Helen was not his great-grandmother, but she was "great."

GREAT GRANDMOTHER by Joshua Kachnycz, November 2002

     My grandmother was always someone I looked up to, someone who was always there for me-up until December 7, 1999, but that is an entirely different story.

     My grandmother, Helen Kimbleton, has made a very large impact on my life. Here are some examples of ways that my grandmother has impacted me.

     When I was four and five I loved to have her read to me. This gave me my great adoration for reading, which I do every day. Every Thursday during the summer my grandma and I would go to the library and the playground across the street from it.

     The playground was typical with monkey bars, slides, poles, and basketball hoops. I would play there for hours upon hours in that playground. But there was one feature that most other playgrounds did not have that I loved the best. It was a baseball field where I could practice my swing. My grandmother and I might play catch or she would pitch to me and I would swing. This inspired me to spend most of my free time outside.

     My grandmother and I sometimes went on walks and planted some trees. She taught me how to take care of plants and gave me a baby tree which I named "Woody." He is still planted in the backyard of my old house. This motivated me to care more about nature.

     All of these things that my grandmother inspired me to do are things that I still do to this day so that her memory will live on in my heart.

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Resource: Supports for Grieving Part 1

Thursday, July 17, 2025

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Image: Summer Sky 5/28/2024 by Gail K. Kachnycz

RESOURCE: Supports for Grieving Part 1 by Gail K. Kachnycz 17 July 2025

     Sometimes our role as caregiver ends because the journey of our loved one on earth has ended. Although it is a comfort to know they are "absent from the body and ...present with the Lord" (2 Corinthians 5:8), we miss them and grieve the loss. A daily routine devoted to support and caregiving no longer provides structure to the day, which can intensify loneliness. Grief is different for each person, and can be unpredictable. Today I am posting resources that have been shared with me, either personally or professionally. Some are not specifically Christian, but their aim is to provide support. In two weeks I will share Part 2, listing resources specifically designed for children experiencing loss.

Image: The Verse of the Day 14 July 2025

SUPPORT GROUPS:

Grief Share Not specifically Christian, but provides supports both online and in person

Boomers R Heroes Support groups online and in person for grief, general caregivers, and Alzheimer's

BOOKS:

90 Minutes in Heaven by Don Piper with Cecil Murphey Blog Post Book Review

Glimpses of Heaven; Reflections on Your Eternal Hope by Dave & Jan Dravecky with Amanda Sorenson 

When God Doesn't Make Sense by Dr. James Dobson Blog Post: Deeper Questions 6/4//25





 

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Emergency Preparation #1

Wednesday, June 25, 2025

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Image: CBS News Philadelphia 20 June 2025

EMERGENCY PREPARATION #1 by Gail K. Kachnycz 25 June 2025

 

     Last Thursday evening, June 19, strong storms hit the Delaware Valley. Our power went out about 5:30 PM. Electricity was restored in our home about 11:30 AM the next day. However, neighbors only a few miles away had no electricity for 3-4 days. We also had outages for 3 hours Sunday and 30 minutes just last night. Our cell phone service has been spotty. This experience has prompted today's post. 

     Caregivers and those with chronic illness face added difficulties in emergency situations. Medical equipment may have battery back-up, but eventually recharging is needed. Lack of air conditioning, or poor air quality, first affects sensitive groups such as those with heart/lung conditions, children and elderly. Some events can be anticipated, such as hurricanes or severe snowstorms. Others can happen with little or no warning, such as the storm we experienced, or wild fires. Hurricane season on the East Coast & Gulf starts June 1 and continues through November 30. These dates are good reminders to review a plan for emergencies, and update or replace supplies that are nearing their expiration date.

     To be quite honest, I do not have a formal Emergency Plan or stock of supplies. However, I always try to fill the car with gas, since no electricity means the pumps will not work. Making sure my phone is fully charged is important, since that is the portal for news and communication. After our recent experience, I am looking at how I can be better prepared. I am including the links for Ready.gov below. If you have tips, ideas, or information that is helpful for planning for emergencies, please share with me. If appropriate, I will include in future posts. I do plan to have several posts on different topics for emergency planning, such as electronics, food, and medication.

Ready Emergency Supply List

Ready.gov Website

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Spring Training, Special Olympics

Wednesday, March 26, 2025

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Image: Rebecca, student athlete with Special Olympics Spring 2022

     This week the theme of the Special Olympics continues. Although Down Syndrome may be the most well known, there are other conditions that can result in intellectual disabilities. Participation in sports has many benefits, including improvement to physical health, team participation, and achieving goals. Connections between families are formed. The Special Olympics website has many stories of the impact on communities, both here in the USA and around the world.

Special Olympics Organization

     The happy smile on Rebecca's face shows how much she enjoyed her participation in the Special Olympics. Here is a link to the full story:

https://www.cheltenham.org/district-spotlight-hub/21-22-spotlights



  

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Trisomy 21 Day

Wednesday, March 19, 2025

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Image: The Kachnycz "Brothers" Mike & his brother Tom, the kids, Josh & Jesse (fall 1999)

     This Friday, March 21, is "Trisomy 21 Day" (3/21). This designation highlights the inclusion of those with Trisomy 21 (also known as Down Syndrome). Mike's brother Tom was born in the 1960's, when children with special needs were usually placed in institutional schools, rather than remaining in the community and being educated in the least restricted environment. In that era, advocacy by family members and other concerned individuals resulted in legislation to change this. My post from 7/31/24 outlines the landmark decisions:

https://amapthroughthevalley.blogspot.com/2024/07/july-disability-pride-month.html

     As spring approaches, I would also like to feature the Special Olympics. Founded in 1968 by Eunice Kennedy Shriver, the Special Olympics is "a global sports movement to end discrimination against people with intellectual disabilities." To learn more, or find a program near you, use this link:

Special Olympics Organization

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Adaptive Renovations

Wednesday, February 26, 2025

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Image: Logo for Institute on Disabilities at Temple University

ADAPTIVE RENOVATIONS by Gail K. Kachnycz 26 February 2025

     One project in our house renovation is to adapt a bathroom with an accessible shower for Mike. In our case, it will mean opening the wall of the current half-bath to extend about two feet into our garage. In some cases, adapting a bathroom will not require such major changes. It could mean a tub to shower conversion with non-slip surfaces, and adding grab bars and a hand-held shower head.

     Construction can be expensive. However, there are programs that provide financial help or other assistance. A friend had her bathroom renovated to include adaptive and safety features. The project was done for free, but she had to apply and qualify, and then once she was approved, she waited two years. A picture of the finished bathroom and the contact information for the city office to apply are below.


This renovation was done in 2023.

Philadelphia Housing Development Corporation, 1234 Market Street, Philadelphia PA 19107

215-448-2160

     Temple University in Philadelphia has an Institute on Disabilities that is hosting a summit on technology and adaptive products. It is taking place Thursday March 6. A similar program is taking place in the Pittsburgh area March 13. As of this week, registration is now full. However, the department is a permanent presence in the university and another seminar may take place in the future. I am including the link below so you have an idea of the content. There is an option to be added to the institute's mail list, and be notified of the next summit. You may also contact the Institute to see if they have information that would be helpful to your specific situation. The link to be added to the mail list is at the very bottom of the notice, and also listed separately in this post.

PA Technology Summit

Temple Institute on Disabilities Mail List

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Medicare: PA MEDI Helps Explain Plans

Wednesday, October 30, 2024

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Image: Medicare Collage. Philadelphia Corporation for Aging website accessed 10/25/24

Medicare: PA MEDI Helps Explain Plans

By Gail K. Kachnycz on 25 October 2024 

     If you are caring for someone with chronic illness, you may be dealing with insurance provided by Medicare. This government health insurance is available to those over 65 years, but in some cases may be available to people under 65. For example, my husband Mike was eligible for Medicare after he had been on long-term disability for two years, even though he was younger than 65 years.

     Open Enrollment, that is, the opportunity to change coverage options, is occurring now. From October 15, 2024 through December 7, 2024, changes can be made which will be active starting January 1, 2025. Media advertisements and direct mailings offer a dizzying number of plans. Processing this overwhelming amount of information can be confusing. However, there is help that is not biased or promoting a specific insurance agency or plan.  PA MEDI (Medicare Education and Decision Insight Program) is a statewide service operated by the Pennsylvania Department of Aging through the state’s Area Agencies on Aging. The program offers free, unbiased, confidential counseling regarding Medicare enrollment and selection of plans. An appointment is needed. The ideal time to contact this organization is three months before a person’s 65 th birthday, when they are first eligible for Medicare. Help during Open Enrollment is also available. Another time when the plan can be changed is after a “qualifying event.” Examples include (but are not limited to) getting married, moving to a new area, or experiencing a shift in employment status.

There are two service providers in Philadelphia:

215-456-7600 Einstein Medical Center (now part of the Jefferson system)

215-545-5728 Center for Advocacy for the Rights and Interests of Elders (CARIE)

There is a Helpline for those who do not live in Philadelphia:

1-800-783-7067 PA MEDI Helpline; toll free, call weekdays 8 AM to 5 PM

     More information is available on the website of the Philadelphia Corporation for Aging

PCA Home Page

Select “Services,” “Community & Connection,” then “Medicare Help for Older Philadelphians through PA MEDI” or use the direct link:

PA MEDI


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Introducing: Community Connections Collaborative & WikiDelphia

Friday, October 25, 2024

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Image: Community Connections Collaborative (CCC) Home Page Logo; accessed 10/24/24

Introducing: Community Connections Collaborative & WikiDelphia

     Over the past year, I have come to learn that I am not alone as a caregiver. There are others in the community who understand & share my journey, or have supports or information that can help me. One such organization is Community Connections Collaborative (CCC). This organization meets monthly by Zoom, and from time to time in person for networking events. Members represent a wide range of community services, including agencies or services that would be of assistance to caregivers and those with chronic illness. For example, Jean Kirkley, the CEO of Boomers R Heroes, was featured in the post published April 10, 2024.

Here is an excerpt from the Home Page of CCC

Community Connections Collaborative (CCC) is an unincorporated nonprofit association of seasoned leaders and connectors within the Philadelphia Community.   Our motto is Relationships Matter.  Our mission is to facilitate connections and collaboration among individuals, groups, and service providers to improve community health and quality of life.   Our vision is to be a thriving community of information advocates and social service providers increasing access to knowledge, resources and tools that overcome barriers to collaboration and sharing.

This spreadsheet located on their website lists many of the organizations that participate:

CCC Organizations requesting tables at events

WikiDelphia is another link that can be accessed through the CCC website. This website provides contact information for agencies and services in the Philadelphia Area. The link through CCC lists emergency contacts first, which is very helpful. You can check it out here:

WikiDelphia

Both of these website include a wide range of services. I will plan to feature information specifically helpful to caregivers and those with chronic illness in future posts. 

Image: WikiDelphia Logo, accessed 10/24/24


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Resource: Christian Mental Health Initiative

Saturday, September 21, 2024

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Image: Logo, Christian Mental Health Initiative. Accessed 21 September 2024

FEATURED RESOURCE: CHRISTIAN MENTAL HEALTH INITIATIVE

     This week we introduce the resource Christian Mental Health Initiative

     Just as Christians are susceptible to physical illness, they are not immune to mental illness. However, they may feel that a Christian should not struggle with mental health issues. Scripture passages such as 

"The joy of the Lord is my strength." Nehemiah 8:10

"I can do all things through Christ Who strengthens me." Philippians 4:13

seem to indicate that a Christian should not need professional counseling. However, just as a broken leg needs a medical doctor, a broken heart can require the services of a professional counselor. Secular counseling can be helpful, but a Christian appreciates counseling that includes prayer and an approach that recognizes the sinful nature of humans and the power of Christ to overcome sin. Tapping into healing by the Holy Spirit is a limitless source of comfort and strength, but at times personal support is needed to guide someone to the Healer. 

     The Christian Mental Health Initiative addresses many issues. During September, Suicide Prevention Month, these articles have been posted on their website. 



    

 I hope that this resource will be a benefit to care-givers and those they love as they explore other topics on this website.





  

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