Miracle Machine

Wednesday, May 29, 2024

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Photo: Oxygen Concentrator Machine by Gail K. Kachnycz

MIRACLE MACHINE

By Gail K. Kachnycz 22 February 2024

     “Save the Date.” You might have received a notice with this message, perhaps to make plans to attend a future wedding. In October 2021, I received a Save the Date notice for my high school reunion, to be held in September 2022. As events unfolded, they would demonstrate God’s faithfulness and perfect timing, and the power of prayer.

    The story actually began months earlier, in July of 2021. My husband Mike had been on hospice for 30 months. Since hospice care is considered when there is a life expectancy of only six to eight months or less, his case would receive an in-depth audit. We were advised that he would be discharged from hospice, but that we could appeal this decision. Hospice staff stated that since his condition continued to decline, they anticipated the appeal would be granted to reinstate hospice care.

     We were told that prescriptions and medical supports would continue during the process of appeal. However, just before the Independence Day weekend, I saw a medical supply truck pull up in our driveway. When I greeted the driver and asked the purpose of his visit, he replied that he was here to collect the oxygen equipment.

     “Did you confirm that with the patient?” I asked. The driver said, “No,” and looked confused. I can’t blame him. When a hospice agency notifies vendors that a patient is “discharged,” it usually means the client has died. I checked with Mike, who had received no notice of this plan. I told the driver my husband still had need of the oxygen equipment, and to be on his way. Because oxygen equipment is designated as “life-sustaining,” it cannot be removed unless it is replaced with identical equipment that is fully functional. While at home, Mike used an oxygen concentrator, a machine about the size of a dehumidifier or a tall kitchen trash can. He also had a smaller portable unit for use when he was traveling, that could be carried using a strap over-the-shoulder. The appeal process advanced through three levels over the course of about ten weeks. By mid-September 2021, the appeal process ended and Mike’s hospice care was not reinstated. He retained possession of the oxygen equipment, but without a service agency there was no maintenance or repair provided. Over the course of a year, the floor model oxygen concentrator ceased to function. Mike began to use the auxiliary equipment constantly, rather than just for travel. By September 6, 2022, the portable unit had also worn out.

     Once the third appeal was denied, Mike’s care transferred to his Primary Care Provider. She issued a prescription for oxygen equipment for his use. Mike researched several suppliers and found one online that included equipment maintenance. They were even willing to extend their Labor Day Discount although it was mid-September by the time Mike was ready to make the purchase. Mike was planning to purchase the machines September 14, 2022, when he learned that Medicare was putting a hold on approvals for two weeks, until September 28. The equipment cost thousands of dollars, and the reimbursement from Medicare was essential to make the purchase affordable. Mike had been without supplemental oxygen for over a week, and waiting another two weeks for the purchase, perhaps longer for the delivery, was a threat to his health. Our church fellowship had sustained us in prayer through the appeal process and we turned to them again, asking for prayer for God to provide in this situation that seemed to have no solution.

     I made plans to attend my high school reunion, set for September 16, 2022. Since the event would end late, about 11 PM, I arranged to stay at the home of a good friend also attending the reunion. When I arrived Friday afternoon, Kathy and I caught up on the news of our families. Uppermost in my mind was Mike’s need for oxygen equipment. I explained to Kathy the difficulties we were having making the purchase, especially the freeze on approvals by Medicare. Kathy listened carefully and then asked, “Would you like to borrow an oxygen concentrator until you can get your own? I have one in my attic.”

     I was incredulous; who does that? Who keeps an oxygen concentrator in their attic? I checked with Mike, who was as amazed as I was, and we gratefully accepted the offer. Kathy explained that she purchased the machine when her own mother was on hospice care. After her mother passed away, the machine was stored in her attic for the past four years.

     The following day the oxygen concentrator was loaded into my car. I arrived home by noon, and within an hour the machine was set up and in use. In addition, Medicare resumed reimbursement approvals after only one week rather than two, so Mike placed his order for purchase and had his own equipment by the end of September.

     Our experience demonstrates the power of prayer. When we asked our church fellowship to pray, things happened! Be open to having God answer in unexpected ways. It is also a testimony to God’s faithfulness: providing our individual needs.

     And finally, trust God’s timing. My “Save the Date” notice arrived the month after the third & final appeal to Medicare for hospice services was denied. God knew exactly how long the oxygen equipment would last and when it would need to be replaced. He knew when I would be with my friend, ten days after the last portable oxygen machine wore out. The oxygen concentrator in the attic was just what we needed, exactly at the time it was needed. 

And my God will supply all your needs according to His riches in glory in Christ Jesus. Philippians 4:19 NASB2020 

For I know the plans that I have for you’ declares the LORD, ‘plans for prosperity and not for disaster, to give you a future and a hope.’ Jeremiah 29:11 NASB2020 

Now unto him that is able to do exceeding abundantly above all that we ask or think, according to the power that worketh in us, unto him be glory in the church by Christ Jesus throughout all ages, world without end. Amen. Ephesians 3:20-21 KJV


My friend Kathy was certainly "a friend in need, a friend in deed"

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Recipe: Quinoa Salad

Thursday, May 23, 2024

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Photo: Quinoa (Keen-wah) Salad by Gail K. Kachnycz

     This month's recipe is my go-to for gatherings with family or at work. It can be made ahead and saved in the fridge, is gluten free and vegan. There is no mayonnaise to spoil in hot weather. The original recipe was given to me by Mike's niece on the back of an envelope, and had instructions for using 4 cobs of corn and making vinaigrette from scratch using roasted tomatoes. I tweaked this to make a quick version with tomato paste, so if you need to be particularly cautious about gluten or salt, check the ingredient list on the can. I like cilantro, but some people think it tastes like dish soap (a genetic difference!), so when I make this for a gathering I bring the cilantro in a separate container for folks to garnish if they wish. This recipe does have a Mexican flavor palate, so if there are left-overs (IF!) I just make a batch of chili and toss in the remaining portion. Enjoy!

QUINOA SALAD, QUICK AND EASY VERSION (Gail Kachnycz)

Gluten free, vegan, easy to make ahead, great to eat with tortilla chips.

If you have left-overs, can mix into chili and cook!

Original version used grilled cherry tomatoes for vinaigrette, and 4 cobs of corn 

Ingredients:

Quinoa:

 ½ cup uncooked, boil in ¾ cups water according to package to equal 2 cups cooked

Corn: 2 ½ cups frozen or 1 can (15 oz) kernels sweet corn

Black beans: 2 cans (15 oz each)

Tomatoes: 20 ounces cherry or grape size

Sweet Pepper: 1 red or orange

Green onions: 4 onions sliced/ chopped

Cilantro leaves: ½ cup chopped (serve as a separate garnish if at a gathering) 

Vinaigrette: see ingredients below

For Vinaigrette dressing, whisk together until smooth:

1 tablespoon tomato paste, thin down with a little hot water until it is sauce consistency

½ cup lime juice

2/3 cup olive oil

2 teaspoons chili powder

1 teaspoon cumin

1 teaspoon black pepper

1 teaspoon salt 

Prepare:

Cook the quinoa and steam the corn if using frozen corn.

While the quinoa & corn are cooking & cooling, drain and rinse the beans

Chop up the tomatoes, pepper, onions, and cilantro

Mix everything together in a large bowl (reserve cilantro if serving at a gathering)

Mix the vinaigrette into the salad (see the ingredients & instructions above).

Refrigerate for several hours or overnight. Stir before serving. 

 

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NAMI & Mental Health Awareness Month

Wednesday, May 15, 2024

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Image: NAMI website accessed 5/13/24 National Alliance on Mental Illness www.nami.org

MAY 2024 is MENTAL HEALTH AWARENESS MONTH

     It is important to realize that our mental state can be healthy or ill. Mental illness is a genuine illness, and can be treated. The chronic nature of many mental health conditions means that caregivers and families need support and can benefit from education and advocacy. 

     NAMI, National Alliance on Mental Illness offers these services. This non-profit was founded in 1979 by Harriet Shetler. Over the years, programs have been developed that educate families and health providers, offer support groups for families in both English and Spanish, and many other services. Here is a link to their website:

NAMI website 

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DON'T COMPARE

Wednesday, May 8, 2024

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Photo: Mike with Rebecca, 2023

DON’T COMPARE

By Gail K. Kachnycz; 05 March 2024 

     There have been times when people have said to me, “You are so patient,” or “You are such a good care-giver to Mike.” I acknowledge their encouragement and support, but there are times when I think to myself, “I am a spiritual wimp.” This often happens during a coastal storm, when the wind and rain are whipping against the house and I check the locations in the kitchen and basement where there have been leaks in the past. My inner conversation starts out, “Well, even if there are leaks, at least you have a house, you are not homeless,” and progresses to “You should be grateful you are not a refugee because your country is at war,” to “You are a spiritual wimp.”

     Yes, I do need to be grateful, but this train of thought, comparing myself to those who have less than I do, is just as wrong as coveting the possessions of people who have more than I do. The same applies in spiritual matters. In John Chapter 21, Peter asks about what may happen to the disciple John.

When Peter saw him [John], he asked, “Lord, What about him?” Jesus answered, “If I want him to remain alive until I return, what is that to you? You must follow me.” John 21:21-22 NIV 

     There is a parallel in care-giving. Don’t compare your care-giving experience to someone else.

     I have a dear friend, Donna, who has a daughter with special needs. Although Rebecca’s birth was difficult, she did well as an infant and toddler. Concerns were raised when she was not starting to talk at age three years. Initial referral for evaluation led to further testing. After several more years, a rare genetic cause was identified.

     Donna had three children older than Rebecca, and she supported and encouraged them all to achieve their full potential. I was in awe of her patience to help her youngest daughter through therapies to address delayed development in speech and other areas. There were additional medical conditions related to the genetic defect, requiring appointments with specialists, tests, and medication adjustments. Donna kept a notebook to organize all the medical information, so every doctor had the full picture. Donna also advocated for her daughter at the annual meetings at school to set up Rebecca’s Individual Education Program for the next year. She did all this while working full time as a cardiac nurse, and serving in leadership with her husband at church.

     Today Rebecca is a lovely young woman. She is eager to attend her adult day program and also participates in dance class and Special Olympics. She loves Jesus. Donna says, “Whenever we have a problem, Rebecca’s first response is to pray. She is our ‘Prayer First Responder’.”

     Since he first brought a turkey dinner to the family the day she was born, Mike and Rebecca have had a wonderful friendship. She calls him “Uncle Mike” and prays for him every night, “to have enough doctors and nurses, and no pain.”

     For over twenty years I have watched Donna and her husband Dan cherish Rebecca as a precious daughter, care for her, advocate for her, and seek to help her live her best life. From time to time, I have said to myself, “I don’t have the patience or grace needed to be a good parent for a child with developmental challenges.” I am probably right, because God didn’t ask me to be that parent. Instead, He gave me the patience and grace to be the suitable helper for someone with chronic, progressive illness. 

     The author of Hebrews writes these instructions as Chapter 12 begins:

     Therefore, since we also have such a great cloud of witnesses surrounding us, let’s rid ourselves of every obstacle and the sin which so easily entangles us, and let’s run with endurance the race that is set before us, looking only at Jesus, the originator and perfecter of the faith, who for the joy set before Him endured the cross, despising the shame, and has sat down at the right hand of the throne of God. Hebrews 12:1-2 NASB2020 

     Central to the passage are the instructions

Let’s run with endurance the race that is set before us (not someone else’s race) looking at Jesus 

     Don’t compare, just follow Jesus, and do what He asks of you.

Behind a special needs child there is usually a pretty special mom. HAPPY MOTHER'S DAY!


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THE PATH OF TOTALITY

Wednesday, May 1, 2024

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THE PATH OF TOTALITY

By Gail K. Kachnycz; 14 March 2024, revised 30 April 2024



     The LORD bless you and keep you; the LORD make His face shine upon you, And be gracious to you; The LORD lift up His countenance upon you, And give you peace.

Numbers 6:24-26 NKJV 

     Today, a solar eclipse is anticipated as an incredible astronomical event. Thousands gather to view, and scientists prepare to gather data only available in the Path of Totality. Even though we understand the reason an eclipse occurs, there is something unsettling about the interruption of natural rhythms. In the Path of Totality, darkness envelopes us in the middle of a sunny day, along with an unusual sudden chill. Having the light return in the western sky, instead of the east, is startling and un-natural. No wonder the ancients were terrified! Unlike us, they were not assured that in the next hour the sun would return to full brilliance and warmth.

     I see a spiritual parallel that I would like to share with you. There may be times in our lives when the darkness of deep pain overcomes us. Examples from my own life are the death of my mother after a car crash, and the recommendation of hospice status for my husband Mike. You can probably think of a time when you thought hope was lost. We did nothing to cause it, and there was nothing we could have done to prevent it. The shadow of suffering swept over us, plunging us into the darkness. We wondered why God’s face was not shining on us; where had He gone? We struggled to find His peace. In that dark time we may despair, but we are not alone.

     In Genesis Chapter 32, Jacob spent a night in darkness and despair. He feared that his brother Esau, who was traveling to meet him with 400 men, would kill him and his family. However, Jacob was not alone. He encountered someone, and wrestled with Him through the night. Although he could not gain the upper hand, Jacob persisted and refused to give up. 

Jacob said, “I will not let you go unless you bless me.”

So he said to him, “What is your name?”

And he said, “Jacob.”

Then he said, “Your name shall no longer be Jacob, but Israel, for you have contended with God and with men, and have prevailed.”

And Jacob asked him and said, “Please tell me your name.”

But he said, “Why is it that you ask my name?” And he blessed him there.

So Jacob named the place Peniel, for he said, “I have seen God face to face, yet my life has been spared.” Now the sun rose upon him just as he crossed over Penuel, and he was limping on his hip. Genesis 32:26-31 NASB2020 

     When we are in the darkness, we are not alone. God is there. He does not mind if we wrestle with Him. We can dare to “take the glasses off,” express our true feelings and ask the hard questions. Hold on to God, and don’t let go until He blesses you, and you see His face. Like the streaming beams of the corona, some experiences of God’s care and compassion are only revealed in the darkest time, when the Path of Totality passes over our lives. Like Jacob, it is possible for us to see God “face to face” and live, to tell others of the grace and peace that emanate from His presence, even in the darkness.



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