JULY: DISABILITY PRIDE MONTH

Wednesday, July 31, 2024

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Image from www.npr.org "In Their Own Words: How The Americans With Disabilities Act Changed People's Lives." Accessed 7/31/2024

JULY: DISABILITY PRIDE MONTH        By Gail K. Kachnycz on 31 July 2024 

     Some people may not think of themselves as care-givers because they do not provide hands-on care to their loved one. However, being an advocate for someone who needs modifications or special support is just as important as physical care. Often it can be just as demanding or time consuming.

     July has been designated Disability Pride Month, to commemorate the passage of the Americans with Disabilities Act (ADA).

“On July 26, 1990, the Americans with Disabilities Act banned discrimination based on disability in all parts of public life. People with disabilities could no longer be denied access to jobs, schools and transportation. The law also included private places that are generally open to the public, such as restaurants and movie theaters.” [1]

    A recognizable result of this law is the modification of public sidewalks with curb cuts and ramps to the entry point of buildings. Opportunities for employment and education opened up.

     Other red-letter dates include:

1975: Public Law (PL) 94-142; The Education for All Handicapped Children Act. This guaranteed a Free and Appropriate Public Education (FAPE) for children with disabilities. In 1990, PL 94-142 was reauthorized by Congress, and the name of the Act was changed to the Individuals with Disabilities Education Act (IDEA) to use more contemporary and respectful terms. [2]

1984: Halderman v. Pennhurst State School and Hospital. On January 23, 1984, the US Supreme Court decided in favor of Terri Lee Halderman and her family, and ruled that “an institution must be closed based on a constitutional right to community services.”[3] This resulted in dozens of disabled individuals being transferred from living in a large institution in Pennsylvania, to living in small groups in community settings, known as “community living arrangements” with special supports. Since the ruling was from the Supreme Court, individuals in all states were afforded these protections and freedoms.

     In the situations described above, the people who needed to have their rights and freedoms secured required advocates to demand that they be treated with the care, respect and dignity that they deserved. Compassion, patience, and tenacity resulted in legislation and litigation that has benefited those with disabilities nationwide. As Disability Pride Month comes to a close, we salute advocates, both on the public and individual level, who demonstrate the Golden Rule in action. 

So in everything, do to others what you would have them do to you, for this sums up the Law and the Prophets. Matthew 7:12 KJV

you shall love your neighbor as yourself: I am the LORD. Leviticus 19:18b NKJV 

[1] www.npr.org In Their Own Words: How The Americans With Disabilities Act Changed People’s Lives, Morning Edition 7/27/2020. Accessed 7/31/2024 

[2] http:www.ed.gov/print/policy/speced/idea/history.html Accessed 3/9/2005 

[3] en.wikipedia.org/wiki/Pennhurst_State_School_and_Hospital_v._Halderman

     Accessed 6/25/2024

[3] http://www.preservepennhurst.org Accessed 7/30/2024


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CHRISTMAS IN JULY

Wednesday, July 24, 2024

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CHRISTMAS IN JULY by Gail K. Kachnycz

     Is Christmas “The Most Wonderful Time of the Year,” or do you anticipate it with fear instead of cheer? Now that I am retired, I have time to plan ahead more easily. When I was still working, full time during the week and part time on the weekend, there was less time to devote to preparing for celebrations and parties at both jobs, church, and with family. My husband was still able to handle gifts for family, and was always better at that than I was. However, I felt a bit overwhelmed with making a dish or dessert for four parties, gifts for my co-workers, and hosting Christmas brunch and dinner for our immediate family and often hosting Christmas Eve for extended family. Over the years, I learned some tricks to decrease the stress and place more emphasis on the holiday traditions that are meaningful to me. 

1. “CLEAR THE DECKS…with boughs of holly” Clearing the decks means removing everything from the schedule that you possibly can, reserving time for those events that are important to you. Some ways to do this would be:

a. Schedule any routine events, such as dental appointments, car maintenance, etc. for either before mid-November or after the New Year.

b. Change Christmas cards into “Holiday” cards. I learned this from a friend, who sent out greetings in February, stating, “Groundhog Day is a holiday, isn’t it?” I have many relatives and friends who live some distance away, so I like to send a newsletter. I now plan that it is a “New Year” letter, but it might arrive near Groundhog Day, Presidents Day, or even St. Patrick’s Day.

c. The freezer is your friend. If you are expected to provide homemade cookies at work or family or church parties, choose ones that freeze well, and have a baking day some time during the fall. 

2. Take a tip from Tevye, “TRADITION…TRADITION!” Many of the cherished memories of Christmas are of events, foods, or music that happened every year. Use this to your advantage, so you don’t have to re-invent the wheel time and again. Put the dates for parties, concerts, and other events in your calendar as soon as you know them.

a. Toward the end of my career, I discovered a dish for sharing at work parties that could be made ahead, refrigerated, and did not need re-heating. One co-worker reminded me every time she saw me until I sent her the recipe. It became my go-to for pot-luck events. The recipe for Quinoa Salad was published on May 23. If possible, become known for bringing the same dish or dessert to large meals. You have the advantage of knowing how to prepare it, and having the correct equipment/serving dish. The host has the advantage of counting on your contribution to the meal (always confirm with your host).

b. If you are responsible for gifts, consider a membership that can be renewed every year. I have received memberships to gardens in the Delaware Valley and enjoy these very much.

c. Budget for charitable donations. The Christmas season is a time of giving. Some charities make special appeals at this time. “Giving Tuesday” has become a tradition.

d. Make a list, check it twice. I have a master list for Christmas as a document on my computer; it includes family/friends, church, and charities. I have changed it slightly each year, adding new family members or removing the work obligations once I retired. Preparing the list (maybe in July?) means you can take advantage of sales online or in stores. For example, if you prepare shoebox gifts for Operation Christmas Child, you can take advantage of sales at the end of summer and back-to-school specials.

3. ALL IS CALM…ALL IS BRIGHT One of the most important parts of the Christmas season is including the traditions or events that are meaningful to you. This is part of self-care for a care-giver. My church tradition when I was growing up included celebrating the Advent Wreath the four Sundays before Christmas, and the candlelight service Christmas Eve. I especially enjoy the carols and hymns of Christmas. If attending a service like this in person is difficult, check for special holiday concerts that are being broadcast; check listings on Public Television. Recording the program and watching it when you are able could be very restorative. For stories that focus on a more simple celebration of Christmas, I highly recommend A Charlie Brown Christmas and It’s A Wonderful Life

Linus quotes Luke 2:10-11

     If you have suggestions to make the holidays easier, a tradition you enjoy, or a recipe, please send me the information. I will share the ideas in the posts that publish recipes. Contact me:

amapthroughthevalley@gmail.com

 


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Recipe: Peach Crumb Oatmeal

Wednesday, July 17, 2024

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Photo: Gail K. Kachnycz: Peach Crumb Oatmeal 

Summer is peach season. I searched for the perfect Peach Cobbler, but just couldn't find something that was sturdy enough to absorb the juice of the peaches without turning to mush. So, I turned to my old stand-by: Baked Oatmeal. I tweaked it a bit and added my mother's crumb topping. Brown sugar & cloves give it a hearty flavor that doesn't fade away when topped with vanilla ice cream. The recipe below uses canned peaches, so it can be made any time of the year. When using fresh peaches, just substitute a cup of milk instead of the light syrup & dry milk. 

PEACH CRUMB OATMEAL shared by Gail Kachnycz  12/2021

TIME: Bake 1 hour, prep 30 minutes?

Ingredients:                                        NOTE: have a ready a batch of Helen’s Crumb Topping

1 can (29 oz) canned peaches, light syrup      or make the crumb topping while oatmeal bakes:

1/3 cup dry milk                                              1 cup rolled oats

3 cups oatmeal (quick or regular)                    ½ cup butter

1 teaspoon baking powder                              ½ cup brown sugar

1 teaspoon salt                                                1/3 cup flour

3 teaspoons cinnamon                                     1-2 teaspoons cinnamon

1 teaspoon cloves                                            ¼ teaspoon nutmeg

1 cup dried peaches, cut up                            Cut butter into the other ingredients until crumbly

2 beaten eggs                                                  Place on top of anything; bake 30 minutes at 350 F

½ cup vegetable oil                                         Left over crumb topping stores well in the fridge!

2 over-ripe bananas: if frozen, thaw in fridge in a container overnight

NOTE: If using fresh peaches, substitute 1 cup milk for the light syrup and dry milk

Instructions:                                                   Preheat oven to 350 degrees F

1. Drain the canned peaches into a large bowl. Cut up the peaches into chunks and place in a medium bowl. Sprinkle with 1 teaspoon cinnamon and 1 teaspoon cloves & mix together.

2. Mix the 1/3 dry milk into the peach liquid & stir to dissolve the milk powder.

3. In a medium bowl, mix together the dry oatmeal, baking powder, salt, and 2 teaspoons cinnamon. Once mixed well, stir dry ingredients into the peach/milk liquid in the big bowl.

4. In medium bowl, mash bananas until smooth. Wisk in the beaten eggs and then the oil.

5. Add the banana/egg/oil mixture to the oatmeal mixture and stir until well combined.

6. Add cut up dried peaches to the oatmeal and stir until dried peaches are evenly distributed.

7. Use a 9x11” or 9x13” baking dish, spray with non-stick spray. Spread oatmeal in evenly.

9. Spread the cut-up canned peaches evenly over the top of the oatmeal.

10. Bake 30 minutes. Remove from oven and spread crumb topping over the peach layer. The full batch of crumb topping does not need to be used, just use enough to coat & to your liking.

11. Return the oatmeal to the oven and bake 30 more minutes.

12. Allow to cool and enjoy. May be served warm with vanilla ice cream or coffee creamer. 




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Celebrate Freedom Part Two

Wednesday, July 10, 2024

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Image: Liberty Bell, Philadelphia PA; National Park Service
Proclaim liberty throughout the land unto all the inhabitants thereof...Leviticus 25:10 KJV

CELEBRATE FREEDOM PART TWO

By Gail K. Kachnycz 30 June 2024 

     The story of Juneteenth (published 6/26/24) has a spiritual parallel that I began to see more clearly as I researched the topic for that post. The correlation emerged as I identified the timeline of events that led up to the release of all enslaved people in Texas. Historical dates were never my strong point. My investigation revealed that the Emancipation Proclamation was to take effect January 1, 1863, but the slaves in Texas were not freed until two and a half years later. Why was there such a delay?

     First, I had to set aside my 21 st Century mindset, with 24 hour news coverage and instant access by phone in any location. Printed copies of the Proclamation would not be accessible to an illiterate population of African Americans. Even if the message had been sent by telegraph, the most rapid form of communication in the 1860’s, those in power would have no reason to comply with the mandate, because there were no troops in place to enforce the order. Texas, the most western state in the Confederacy, was not occupied by Union soldiers. When I learned this, it was my “ah-hah” moment. Texas was waiting to see who would win the war.

     If the Confederate States had been successful in defeating the Union, Texas would have gone on as before, with no change. The Emancipation Proclamation would have no jurisdiction in a separate sovereign nation. However, with the surrender by General Robert E. Lee to General Grant on April 9, 1865, the Confederacy began to crumble. By June, Union forces reached Texas. At the time, Galveston was a thriving port and the largest city in Texas. Surrender terms were formally signed June 2, 1865 by General Edmund Kirby aboard the USS Fort Jackson in Galveston Harbor. Sixteen days later, Major General Gordon Granger arrived in Galveston with 2,000 Union troops. With the manpower now in place to enforce the decree, Granger issued the emancipation order the very next day, June 19th.

[https://easttexashistory.org/items/show/160 accessed 6/26/2024] 

     I hope that you are also seeing the spiritual parallel. How often are we held captive by fears or lack of belief? The scriptures are our Emancipation Proclamation, declaring the truth of God’s word. However, we may look at the circumstances around us, thinking that is our reality. The truth is,

  we are free because Jesus won the battle.

     Through His death and resurrection, Jesus has defeated sin and death. The Devil must surrender. Jesus has sent the Holy Spirit into the world and into our hearts, the “manpower” to enforce the freedoms that the victorious Christ obtained for us. 

     What fear is holding us captive?

     Worry? Jesus won that battle.

Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus. Philippians 4:6-7 NKJV

     Financial collapse? Jesus won that battle.

And my God shall supply all your need according to His riches in glory by Christ Jesus. Philippians 4:19 NKJV

     Damaged relationships? Jesus won that battle.

For with God nothing will be impossible. Luke 1:37 NKJV 

     The death of a love one? Our own death? Jesus won that battle.

For God so loved the world that He gave His only begotten Son, that whoever believes in Him should not perish but have everlasting life. John 3:16 NKJV

     Chaos and upheaval in the world around us? Jesus won that battle.

These things I have spoken to you, that in Me you may have peace. In the world you will have tribulation; but be of good cheer, I have overcome the world. John 16:33 NKJV 

     Whatever distressing thoughts may crop up, immobilizing us and robbing us of our freedom, we need to remember: Jesus won that battle; we are free.

And you shall know the truth, and the truth shall make you free. John 8:32 NKJV

Therefore if the Son makes you free, you shall be free indeed. John 8:36 NKJV


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Resource: Vision for Equality

Wednesday, July 3, 2024

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Logo: Vision for Equality

Hello to fellow Caregivers, this information came to me from Donna, the "Special Mom" featured in the Mother's Day post May 8. Please feel free to share with anyone you feel would be interested or benefit from this support. Here is the information from Visions for Equality: 

Hi! My name is Sarah.  I am a Family Support Specialist for the Birth-Five project, part of Vision for Equality’s Philadelphia Family Support Projects. The projects provide one to one peer support to assist families navigate supports and services for their children with intellectual and developmental disabilities (I/DD), including autism.  In addition to peer support, the program provides support groups and trainings for caregivers. We can also provide training to community organizations who support people with I/DD and autism.
The Philadelphia Family Support Projects would like to provide support to faith communities through a workshop. The workshop is How to Support Individuals with I/DD and Autism in Faith Communities, with the goal to assist faith leaders and faith communities by providing them the knowledge and skills needed to welcome and support people with intellectual and developmental disabilities (including autism) and their families who live in their community.
This workshop will cover the following:
  • How to move existing barriers to allow for full participation in spiritual and religious activities.
  • How to foster, build, and maintain relationships, in other words create a sense of belonging.
  • How to use affirming language, participating in respectful interactions, and assuming competence.
I have attached the flyer to the workshop.
Please pass this information to your employees, colleagues, or other faith leaders.
We want to reach as many faith leaders as possible and would appreciate your support and assistance.
Thanks for your time and consideration,
Sarah



Sarah Leaman
Family Support Specialist
Philadelphia Family Support Projects
   
         The Cast Iron Building
          718 Arch Street, 6N
          Philadelphia, PA  19106
          (215) 923-3349 ext. 207




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